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PARCA-R

Citations

If you wish to read more about studies that have used the PARCA-R questionnaire, or to review clinical guidelines in which use of the PARCA-R is recommended, please see the list below.

You can also download the publication list (PDF, 230KB).

A) PARCA-R Technical and Interpretive Manual

Download a free copy of the PARCA-R manual and associated resources.

B) PARCA-R Validation studies

  • Blaggan S, Guy A, Boyle EM, Spata E, Manktelow BN, Wolke D, Johnson S.  Pediatrics 2014;134(1):e55-62. doi: 10.1542/peds.2014-0266
  • Cuttini M, Ferrante P, Mirante N, Chiandotto V, Fertz M, Dall'Oglio AM, Coletti MF, Johnson S. . Early Human Development 2012;88(3):159-63. doi: 10.1016/j.earlhumdev.2011.07.022
  • Johnson S, Marlow N, Wolke D, Davidson L, Marston L, O’Hare A, Peacock J & Schulte J. . Developmental Medicine and Child Neurology 2004;46(6):389-97. doi: 10.1017/s0012162204000635
  • Johnson S, Wolke D, Marlow N; Preterm Infant Parenting Study Group. . Develo pmntal Medicine and Child Neurology 2008;50(1):58-62. doi: 10.1111/j.1469-8749.2007.02010.x
  • Martin AJ, Darlow BA, Salt A, Hague W, Sebastian L, Mann K, et al. . Developmental Medicine and Child Neurology 2012;54(3):254-259. doi: 10.1111/j.1469-8749.2011.04161.x
  • Martin AJ, Darlow BA, Salt A, Hague W, Sebastian L, McNeill N, Tarnow-Mordi W.  Archives of Disease in Childhood 2013;98(12):955-8. doi: 10.1136/archdischild-2012-303288
  • Picotti E, Bechtel N, Latal B, Borradori-Tolsa C, Bickle-Graz M, Grunt S, Johnson S, Wolke D, Natalucci G. . PLOS ONE 2020;15(9):e0236289. doi: 10.1371/journal.pone.0236289
  • Vanhaesebrouck S, Theyskens C, Vanhole C, Allegaert K, Naulaers G, de Zegher F, Daniëls H.  Early Human Development 2014;90(12):897-900. doi: 10.1016/j.earlhumdev.2014.10.004
 

C) PARCA-R Standardisation

  • Johnson S, Bountziouka V, Brocklehurst P, Linsell L, Marlow N, Wolke D, Manktelow BN. . The Lancet Child Adolescent Health 2019;3(1):709-712. doi: 10.1016/S2352-4642(19)30189-0

D) Studies that have used the PARCA-R as an outcome measure

  • Beardmore-Gray A, Greenland M, Linsell L, Juszczak E, Hardy P, Placzek A, Hunter R, Sparkes J, Green M, Shennan A, Marlow N, Chappell LC, PHOENIX Study Group. . British Journal of Obstetrics and Gynaecology 2022;129(10):1654-1663. doi: 10.1111/1471-0528.17167
  • Brocklehurst P, Field D, Greene K, Juszczak E, Kenyon S, Linsell L, Mabey C, Newburn M, Plachcinski R, Quigley M, Steer P, Schroeder L, Rivero-Arias O. NIHR Health Technology Assessment 2018;22(9):1-186. doi: 10.3310/hta22090
  • Brocklehurst P, Farrell B, King A, Juszczak E, Darlow B, Haque K, Salt A, INFANT Collaborative Group. . Lancet 2017;389(10080):1719-1729. doi: 10.1016/S0140-6736(17)30568-8
  • Chappell LC, Brocklehurst P, Green M, Hardy P, Hunter R, Beardmore-Gray A, Bowler U, Brockbank A, Chiocchia V, Cox A, Duhig K, Fleminger J, Gill C, Greenland M, Hendy E, Kennedy A, Leeson P, Linsell L, McCarthy FP, O'Driscoll J, Placzek A, Poston L, Robson S, Rushby P, Sandall J, Scholtz L, Seed PT, Sparkes J, Stanbury K, Tohill S, Thilaganathan B, Townend J, Juszczak E, Marlow N, Shennan A. . NIHR Health Technology Assessment 2022. doi: 10.3310/CWWH0622
  • Dargaville PA, Kamlin COF, Orsini F, Wang X, de Paoli AG, Kutman HGK, Cetinkaya M, Kornhauser-Cerar L, Derrick M, Ozkan H, Hulzebos CV, Schmolzer GM, Aiyaooan A, Lemyre B, Kuo Sheree, Rajadurai VS, O’Shea J, Biniwale M, Ramanathan R, Kushnir A, Bader D, Thomas MR, Chakraborty M, Buksh MJ, Bhatia R, Sullivan CL, Shinwell ES, Dyson A, Barker DP, Kugelman A, Donovan TJ, Goss KCW, Tauscher MK, Murthy V, Ali SKM, Clark HW, Soll RF, Johnson S, Cheong JLY, Carlin JB, Davis PG for the OPTIMIST-A Trial Investigators. . JAMA 2023 2023;330(11):1054-1063. doi: 10.1001/jama.2023.15694
  • Dorling J, Abbott J, Berrington J, Bosiak B, Bowler U, Boyle E, Embleton N, Hewer O, Johnson S, Juszczak E, Leaf A, Linsell L, McCormick K, McGuire W, Omar O, Partlett C, Patel M, Roberts T, Stenson B, Townend J for the SIFT Investigators Group. s. New England Journal of Medicine 2019;381(15):1434-1443. doi: 10.1056/NEJMoa1816654
  • Draper ES, Zeitlin J, Manktelow BN, Piedvache A, Cuttini M, Bonamy AE, Maier R, Koopman-Esseboom C, Gadzinowski J, Boerch K, van Reempts P, Varendi H, Johnson S on behalf of the EPICE group. Archives of Disease in Childhood Fetal and Neonatal Edition 2020;105:350-356. doi: 10.1136/archdischild-2019-317418
  • Edwards D, Redshaw M, Kennea et al. . Arch Dis Child Fetal Neonatal Ed 2018;103:F15–F21. doi: 10.1136/archdischild-2017-313102
  • Field D, Juszczak E, Linsell L, Azzopardi D, Cowan F, Marlow N, et al. Pediatrics 2013;132(5):e1247-1256. doi: 10.1542/peds.2013-1754
  • Field D, Spata E, Davies T, Manktelow B, Johnson S, Boyle E, Draper ES. Archives of Disease in Childhood Fetal and Neonatal Edition 2016;101(4):F304-8. doi: 10.1136/archdischild-2015-309247
  • Gupta S, Juszczak E, Hardy P, Subhedar N, Wylie J, Kelsall W, Sinha S, Johnson S, Roberts T, Hutchison E, Pepperell J, Linsell L, Bell JL, Stanbury K, Laube M, Edwards C, Field D on behalf of The Baby-OSCAR Collaborative Group. . BMC Pediatrics 2021;21:100. doi: 10.1186/s12887-021-02558-7
  • Hodgetts-Morton V, Hewitt CA, Jones L, Leighton L, Pilarski N, Molloy E, Honshaw K, Norman J, Waugh J, Stock S, Thornton J, Toozs-Hobson P, Johnston T, Coomarasamy A, Thangaratinam S, Mol B, Pajkrt E, Marlow N, Roberts T, Middleton L, Brocklehurst P, Morris K. . Trials 2021;22:529. doi: 10.1186/s13063-021-05464-6
  • INIS Collaborative Group. . New England Journal of Medicine 2011;365(13):1201-11. doi: 10.1056/NEJMoa1100441
  • Johnson S, Evans TA, Draper ES, Field DJ, Manktelow BN, Marlow N, Matthews R, Petrou S, Seaton SE, Smith LK, Boyle EM. Archives of Disease in Childhood Fetal and Neonatal Edition 2015;100(4):F301-8. doi: 10.1136/archdischild-2014-307684
  • Johnson S, Matthews R, Draper ES, Field DJ, Manktelow BN, Marlow N, Smith LK, Boyle EM. Journal of Developmental and Behavioral Pediatrics 2015;36(9):690-9. doi: 10.1097/DBP.0000000000000222
  • Johnson S, Waheed G, Manktelow BN, Field D, Marlow N, Draper ES, Boyle EM. . Journal of Pediatrics 2018;193:85-92. doi: 10.1016/j.jpeds.2017.10.002
  • Marlow N, Greenough A, Peacock JL, Marston L, Limb ES, Johnson AH, et al. Archives of Disease in Childhood Fetal and Neonatal Edition 2006;91(5):F320-326. doi: 10.1136/adc.2005.079632
  • Marlow N, Morris T, Brocklehurst P, Carr R, Cowan F, Patel N, Petrou S, Redshaw M, Modi N, Doré CJ. Archives of Disease in Childhood Fetal and Neonatal Edition 2015;100(4):F320-6. doi: 10.1136/archdischild-2014-307410
  • Marlow N, Morris T, Brocklehurst P, Carr R, Cowan FM, Patel N, et al. Archives of Disease in Childhood Fetal and Neonatal Edition 2013;98(1):F46-53. doi: 10.1136/archdischild-2014-307410
  • Moore CM, D’Amore A, Fustolo-Gunnink S, et al. . Archives of Disease in Childhood Fetal and Neonatal EditionPublished Online First: 2023;108:F452–F457. doi:10.1136/archdischild-2022-324915

  • Murray S, Thompson J, Townsend RC, Deidda M, Boyd KA, Norman JE, Norrie J, Boardman JP, Luyt K, Khalil A, Bick D, Reed K, Denton J, Fenwick N, Keerie C, Reynolds R, Stock SJ. . BMJ Open 2024;14:e078778. doi:10.1136/bmjopen-2023-078778

  • Mylrea-Foley B, Thornton J, Mullins E, Marlow N, Hecher K, Ammari C, Arabin B, Berger A, Bergman E, Bhide A, Bilardo C, Binder J, Breeze A, Brodski J, Calda P, Cannings-John R, Cerny A, Cesari E, Cetin I, Dall’Asta A, Diemert A, Ebbing C, Eggebo T, Fantasia I, Ferrazzi E, Frusca T, Ghi T, Goodier J, Greimel P, Gyselaers W, Hassan W, von Kaisenberg C, Kholin A, Klaritsch P, Krofta L, Lindgren P, Lobmaier S, Marsal K, Maruotti GM, Mecacci F, Myklestad K, Napolitano R, Ostermayer E, Papageorghiou A, Potter C, Prefumo F, Raio L, Richter J, Sande RK, Schlembach D, Schleubner E, Stampalija T, Thilganathan B, Townson J, Valensise H, Visser GH, Wee L, Wolf H, Lees CC, TRUFFLE 2 Collaborators List. . BMJ Open 2022;12(4):e055543. doi: 10.1136/bmjopen-2021-055543

  • Vestager ML, Hansen ML, Rasmussen MI, Hahn GH, Hyttel-Sorensen S, Pellicer A, Heuchan AM, Hagmann C, Dempsey E, Dimitriou G, Pichler G, Naulaers G, Fuchs H, Tkaczyk J, Mintzer J, Fumagalli M, Nesargi S, Fredly S, Szczapa T, Gluud C, Jakobsen JC, Greisen G. . Trials 2023;24(1):696. doi: 10.1186/s13063-023-07699-x

E)  Recommendations in clinical guidelines and standards of care

  • British Association of Neonatal Neurodevelopmental Follow up. . London: British Association of Perinatal Medicine; March 2020.
  • British Association of Perinatal Medicine. . London: British Association of Perinatal Medicine; 2008.
  • European Foundation for the Care of Newborn Infants (EFCNI). . Germany 2018.
  • European Foundation for the Care of Newborn Infants (EFCNI). . Germany 2012.
  • International Consortium for Health Outcomes Measurement (ICHOM). . International Consortium for Health Outcomes Measurement, August 2020.
  • Kallioinen M, Eadon H, Murphy MS, Baird G on behalf of the Guideline Committee. . BMJ 2017;358:j3514. doi: 10.1136/bmj.j3514.
  • National Institute for Health and Care Excellence (NICE).  (QS169). NICE 2018.
  • National Institute for Health and Care Excellence (NICE). . Full Guideline (NG-72). NICE 2017.
  • Schouten E, Haupt J, Ramirez J, Sillett N, Nielsen C, Clarke A, Matkin L, Joseph A, Been J, Bolanos Gonzalez I, Cheong J, Daly M, Kirpalani H, Mader S, Maria A, Matijasevich A, Mittal R, Mutesu-Kapembwa K, Vavouraki E, Webbe J, Wolke D, Zeitlin J, Flemmer A. . Neonatology 2022;119(4):443-454. doi: 10.1159/000522318.
  • Preterm follow-up guideline development group. . Melbourne: Centre of Research Excellence in Newborn Medicine; 2024.

F)  Other publications in which the PARCA-R is cited

  • Balasubramanian H, Ahmed J, Ananthan A, Srinivasan L, Mohan D. . Archives of Disease in Childhood 2024;109(9):759-766. doi: 10.1136/archdischild-2023-326771.
  • Bountziouka V, Johnson S, Manktelow BN. . Multivariate Behavioral Research 2023;5:894-910. doi: 10.1080/00273171.2022.2142189
  • Bradshaw LE, Pushpa-Rajah, Dorling J, Mitchell EJ, Duley L and the CORD Pilot Trial Collaborative Group. . Trials 2015;16:407. doi:10.1186/s13063-015-0936-2
  • European Foundation for the Care of Newborn Infants. . Germany, 2023.
  • Johnson S & Bountziouka V for the PARCA-R Study Group. . Infant2020; 16(4): 159-63.
  • Leven L, Grant A, Russell S. . In National Neonatal Audit Programme 2019 Annual Report on 2018 data. Royal College of Paediatrics and Child Health 2019
  • Malak R, Kaczmarek A, Fechner B, Samborski W, Kwiatkowski J, Komisarek O, Tuczynska M, Tuczynska M, Mojs E. . Diagnostic (Basel) 2024;14(16):1764. doi: 10.3390/diagnostics14161764
  • Marlow N, Doyle LW, Anderson P, Johnson S, Bhatt-Mehta V, Natalucci G, Darlow BA, David JM, Turner MA, International Neonatal Consortium. . Pediatric Research 2019;86(5):567-572. doi: 10.1038/s41390-019-0526-1.
  • Merchant N, Shekhar L, Heurtas-Ceballos A, Johnson S, Arasu A for the British Association of Neonatal Neurodevelopmental Follow Up. . Paediatrics and Child Health;32(9): 324-331. doi: https://doi.org/10.1016/j.paed.2022.07.002
  • Modi N, Ribas R, Johnson S, Lek E, Godambe S, Fukari-Irvine E, Ogundipe E, Tusor N, Das N, Udayakumaran A, Moss B, Banda V, Ougham K, Cornelius V, Arasu A, Wardle S, Battersby C, Bravery A. .  BMJ Health Care Inform. 2023;30(1):e100781. doi: 10.1136/bmjhci-2023-100781
  • van Blankenstein E, Sodiwala T, Lanoue J, Modi N, Uthaya SN, Battersby C; on behalf of the UK Neonatal Collaborative. . Archives of Disease in Childhood - Fetal and Neonatal Edition (Published Online First) 2023 Oct. doi: 10.1136/archdischild-2023-325746
  • Vestager ML, Hansen ML, Rasmussen MI, Hahn GH, Hyttel-Sorensen S, Pellicer A, Heuchan AM, Hagmann C, Dempsey E, Dimitriou G, Pichler G, Naulaers G, Fuchs H, Tkaczyk J, Mintzer J, Fumagalli M, Nesargi S, Fredly S, Szczapa T, Gluud C, Jakobsen C, Greisen G. . Trials 2023;24(1):696. doi: 10.1186/s13063-023-07699-x
  • Zeitlin J, Maier RF, Cuttini M, Aden U, Boerch K, Gadzinowski J, Jarreau P, Lebeer J, Norman M, Pedersen P, Petrou S, Pfeil JM, Toome L, van Heijst A, van Reempts P, Varendi H, Barros H, Draper ES for the EPICE and SHIPS Research Groups. . International Journal of Epidemiology 2020, 372-372n. doi: 10.1093/ije/dyz270

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